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Friday, March 13, 2009

Delirium, Justin, killer flu, Who needs a dining room table!



I can't believe it's been a month since I last blogged. What a month it's been.
My dear old Dad is doing well. It's been really tough and heartbreaking. My Dad asked me yesterday what was wrong with him. When I asked him what he meant he told me he woke up from surgery and he wasn't the same. This is the first time he has shown any acknowledgment to the fact that he is NOT the same. A month ago the man came to Tristan's 5th Birthday party walked down my stairs into the car out of the car into the hospital for his surgery the next morning. When he awoke from surgery he was dramatically altered. Whether he has Delirium or if the surgery has caused his Dementia to progress quickly is the question. A month later Dad still isn't up walking like before or even able to swallow solids. He is on a Puree/minced diet and can't manage even a soft piece of fish. These I know are common problems in Alzheimer's and Dementia patients BUT it usually happens slowly over time. So there is a really good chance that Dad has suffered from Delirium which is reversible and in time he may regain his previous skills. So this is what we pray and hope for. Dad will be going to a Rehabilitation centre as soon as they can get his UT and chest Infections under control. He has come a long way. He went from memories in the 50's and not remembering me to asking me how Chanelle is doing and sobbing when it comes time for me to leave as he misses me when I'm not there. Although this is sad it is also Joyous! He knows me and loves and misses me. A few weeks ago I was praying he would regain his memory and he has. My Dad is back and fighting and one day he will walk up my stairs into my home for Saturday movie day. These are my prayers, hopes and dreams :)
This is a month for dreams coming true. My first born who I have not seen in 3 years has been here for a visit. I moved from Vancouver 3 years ago and Justin decided he wanted to stay. Broke my heart but I understood as well. We finally got to have a visit. My parents, sister and I all chipped in and bought him a plane ticket for his 21st Birthday. He came for 2 weeks. Sadly we all got the flu and were sick for most of his visit. Didn't matter though it was nice to have him here. Sick or not. The four of us snuggled up in bed and ate soup and watched the "Life goes on" box set and many other movies and it was just like old times.

Here is a photo of Tristan that makes my heart soar. One of the things alot of people have been preoccupied about is whether or not Tristan will learn to eat with a fork and spoon. I have never been too concerned. I use up all my concerns on little things like will he have to have a feed tube or fundo surgery because he's eroding his esophagus away. Anyway just thought I'd post this up for all those with worry and concern! Not only does he use a spoon he also can balance a bowl of soup on his lap while sitting on the sofa and singing the ABC's along with Rachel from signing time. LOL To all you new Mom's with Chromosomally enhanced children that read my blog. Please don't waste one precious moment worrying over such trivial things. Trust me you'll regret it. Spend your time focusing on your baby because before you know it they'll be all grown up and independent!

4 comments:

RK said...

I am so SO glad that you got to have a visit with Justin!!!!! I can only imagine how your heart soared those two weeks, even if you WERE sick. :o)

lonestar said...

How awesome, I'm glad you had a good visit (even if sick) and that your dad is doing better. I hope he continues to improve, will keep ya'll in my thoughts and prayers.

LauraJ said...

so much for small miracles! so happy your dad is on the mend.
Did you know I was up in the big city and I forgot to bring your phone number! Ugh! I'll be back in the next couple months though so maybe we can meet up again!
xo smooches!

rustinlane.blogspot.com said...

That is nice to hear b/c we are struggling with him feeding his self with a spoon/fork. But your right it shouldn't be that important it will happen in his own time.